Thursday, April 1, 2010


PatientsLikeMe was started in 2004 by 3 MIT engineers. Illness hit home when a Heywood family member developed ALS (Lou Gehrig's disease), and two brothers got together with a friend to develop an online community called PatientsLikeMe.  Here's how it works:
Our goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases. To make this happen, we've created a platform for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.
I think it's so great to see MIT students applying their talent to provide resources for patients and family members. You don't need to be a physician to help patients. Technology offers so many unique ways to serve those who are struggling with life-changing chronic conditions. There are many social support groups and online resources that have allowed patients to get the help they need during some of their most difficult times.

If you're looking for such a resource, visit:

1 comment:

  1. What a great way to empower and educate patients! Knowledge is power.